The Unwanted Guest
Since starting on our Batten journey, we have captured many moments through images and video. Some of the moments are hopeful and inspiring, and others portray the reality that is Batten disease. "Bad Batten - The Unwanted Guest" is a way to give Amelia and Makenzie a voice against this disease as well as to give others a glimpse into living with Batten. Not every Batten child has the ability to articulate their experience or communicate with loved ones. We hope this series offers some insight and motivates those able to help in our fight.