“Learn from yesterday. Live for today. Hope for tomorrow.”

Orison Swett Marden

Bad Batten

the unwanted guest

"Bad Batten - The Unwanted Guest" is a way to give Amelia and Makenzie a voice against this disease as well as to give others a glimpse into living with Batten.


updates from the foundation


upcoming fundraising events


forebatten in the media

The Foundation and the family look back on 2020 in the January 2021 Newsletter

Amelia and Makenzie's new "normal", Fore The Journey Fund created, Butterfly Contest winners announced and research updates in the November 2020 Newsletter

Two years post diagnosis update, new research funded, results of the first annual Take A Swing ForeBatten event in the January 2019 Newsletter

Our Annual Take A Swing Fore Batten event is an online auction only this year. March 15-29, 2021.

In honor of Rare Disease Day, the Weimer Lab sends a special thank you to ForeBatten donors

A joint collaboration with BDSRA providing Batten families with grants to bring much needed smiles

Researched funded by ForeBatten published in prestigious journal Nature Medicine

Karen and David participated as panelist in "Coping in Times of Uncertainty with Team Amicus"

A course designer’s fight to cure Batten disease continues. Here’s how you can help.

As course designer David Kahn’s twin daughters continue to fight Batten disease, he and his wife are battling back

Fighting for a miracle: Course designer David Kahn and his wife, Karen, search for strength in the most daunting battle imaginable

A 501(c)(3) tax-exemption organization

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ForeBatten Foundation

Scottsdale, AZ