“Learn from yesterday. Live for today. Hope for tomorrow.”

Orison Swett Marden

Bad Batten

the unwanted guest

"Bad Batten - The Unwanted Guest" is a way to give Amelia and Makenzie a voice against this disease as well as to give others a glimpse into living with Batten.

News

updates from the foundation

Events

upcoming fundraising events

Media

forebatten in the media

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The Foundation and the family look back on 2020 in the January 2021 Newsletter

Jan 2021
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Amelia and Makenzie's new "normal", Fore The Journey Fund created, Butterfly Contest winners announced and research updates in the November 2020 Newsletter

Nov 2020
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Two years post diagnosis update, new research funded, results of the first annual Take A Swing ForeBatten event in the January 2019 Newsletter

Jan 2019
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Our Annual Take A Swing Fore Batten event is an online auction only this year. March 15-29, 2021.

Learn More
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In honor of Rare Disease Day, the Weimer Lab sends a special thank you to ForeBatten donors

Thank You To Donors
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A joint collaboration with BDSRA providing Batten families with grants to bring much needed smiles

Fore The Journey Fund
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Researched funded by ForeBatten published in prestigious journal Nature Medicine

NatureMedicine.com
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Karen and David participated as panelist in "Coping in Times of Uncertainty with Team Amicus"

Two Disabled Dudes Podcast
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A course designer’s fight to cure Batten disease continues. Here’s how you can help.

Golf.com (2-28-20)
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As course designer David Kahn’s twin daughters continue to fight Batten disease, he and his wife are battling back

Golf.com (2-21-19)
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Fighting for a miracle: Course designer David Kahn and his wife, Karen, search for strength in the most daunting battle imaginable

Golf.com (3-6-18)

A 501(c)(3) tax-exemption organization

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ForeBatten Foundation

Scottsdale, AZ