“Learn from yesterday. Live for today. Hope for tomorrow.”
Orison Swett Marden
Bad Batten
the unwanted guest
"Bad Batten - The Unwanted Guest" is a way to give Amelia and Makenzie a voice against this disease as well as to give others a glimpse into living with Batten.
News
updates from the foundation
Events
upcoming fundraising events
Media
forebatten in the media
2021 year in review celebrating the foundation accomplishments and noting the changes in Makenzie and Amelia brought on by Batten
New grant received, study on CLN3 published, Beat the Heat/Beat Batten event, new research funded and Fore The Journey update in the July 2021 newsletter
Amelia and Makenzie's new "normal", Fore The Journey Fund created, Butterfly Contest winners announced and research updates in the November 2020 Newsletter
Two years post diagnosis update, new research funded, results of the first annual Take A Swing ForeBatten event in the January 2019 Newsletter
How you can play Michael Jordan’s exclusive private club and many other top courses by entering an auction for a great cause
In this exciting study, Weimer Lab demonstrates for the first time an overlap in many CLN interacting partners.
Article describing the 6-year journey to diagnosis of twin girls with varying presentations of the same rare disease. June 2021
David joins Derek Duncan to talk about the emotional toll of caring for his daughters, the shock of their diagnosis four years ago, and how he and his wife, Karen, have created the Fore Batten Foundation to raise awareness and money to fight the disease through one of golf’s largest and most prestigious online auctions.
The golf world has rallied around architect David Kahn’s family, raising money for his daughters’ rare illness
In honor of Rare Disease Day, the Weimer Lab sends a special thank you to ForeBatten donors
A joint collaboration with BDSRA providing Batten families with grants to bring much needed smiles
Karen and David participated as panelist in "Coping in Times of Uncertainty with Team Amicus"
A course designer’s fight to cure Batten disease continues. Here’s how you can help.
As course designer David Kahn’s twin daughters continue to fight Batten disease, he and his wife are battling back
