“Learn from yesterday. Live for today. Hope for tomorrow.”

Orison Swett Marden

Bad Batten

the unwanted guest

"Bad Batten - The Unwanted Guest" is a way to give Amelia and Makenzie a voice against this disease as well as to give others a glimpse into living with Batten.

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News

updates from the foundation

Events

upcoming fundraising events

Media

forebatten in the media

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The Foundation and the family look back on 2020 in the January 2021 Newsletter

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Amelia and Makenzie's new "normal", Fore The Journey Fund created, Butterfly Contest winners announced and research updates in the November 2020 Newsletter

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Two years post diagnosis update, new research funded, results of the first annual Take A Swing ForeBatten event in the January 2019 Newsletter

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Beat the heat, beat Batten at Kona Ice events across the US on June 9, 2021

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Article describing the 6-year journey to diagnosis of twin girls with varying presentations of the same rare disease. June 2021

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David joins Derek Duncan to talk about the emotional toll of caring for his daughters, the shock of their diagnosis four years ago, and how he and his wife, Karen, have created the Fore Batten Foundation to raise awareness and money to fight the disease through one of golf’s largest and most prestigious online auctions.

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The golf world has rallied around architect David Kahn’s family, raising money for his daughters’ rare illness

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In honor of Rare Disease Day, the Weimer Lab sends a special thank you to ForeBatten donors

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A joint collaboration with BDSRA providing Batten families with grants to bring much needed smiles

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Researched funded by ForeBatten published in prestigious journal Nature Medicine

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Karen and David participated as panelist in "Coping in Times of Uncertainty with Team Amicus"

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A course designer’s fight to cure Batten disease continues. Here’s how you can help.

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As course designer David Kahn’s twin daughters continue to fight Batten disease, he and his wife are battling back

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Fighting for a miracle: Course designer David Kahn and his wife, Karen, search for strength in the most daunting battle imaginable