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OUR COMMITMENT TO THE CLN3 BATTEN COMMUNITY​

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At ForeBatten, we believe hope isn’t passive.
Hope is not just wishing for change.
Hope is taking action to create it.

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We are using the same dedicated team and the roadmap we built to move toward a clinical trial for juvenile Batten disease.
We are applying for grants.
We are funding the necessary studies.
We are pushing forward.

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Zebronkysen is a story of perseverance.
But it’s also part of something bigger.

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Project Four Leaf Clover is that bigger movement.
It’s putting hope into action —
so that future children diagnosed with Batten can access treatment earlier,
and families like ours don’t have to fight this hard just to get a chance.

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We are closer than we’ve ever been.
And we are not stopping.