Your generosity at work
As a foundation, we are incredibly blessed to have a wonderful community of support embracing our mission and cause. With each and every thoughtful donation, your dollars are put to work funding a variety of important projects. Ranging from therapies for a cure to improving quality of daily life, our goal is to diversify and attack the problem from multiple angles, while being guided by the brightest scientific minds in the rare disease space.
Below you will find a list of currently funded projects. To learn more about a given study, please click the project and you will be linked to an article with more in depth explanations. None of what you see below would be possible without the generosity of our donors. Thank you for your support!
Dr. Jill Weimer addresses attendees at Take a Swing Fore Batten III