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Greetings from Montana! I am the mother of Kellen who is 10 and has CLN3. He is blind, seizures controlled by meds and we are beginning to see some memory loss. We are all inspired by your strength and courage! Lots of love, The Paynter Family
11/20/20, 9:28 PM
Maryclaire and Dave Rimron
Hello Kahn family! The last time we saw all of you was at the Desert Museum in Tucson several years ago. It was fun to show Valerie and Natalie all of the desert animals. We also had fun seeing you at the American Girl Store in Phoenix. The girls have grown up so much since then! Hugs to you all. MC and Dave