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Amelia and Makenzie
cure Batten disease
We've Come So Far Thanks to Your Support
At ForeBatten Foundation, we work tirelessly to give children with Batten disease the best possible life, to spread awareness of the urgency to fund new treatments, and to help all families affected by Batten disease.
Your past support has helped us achieve so much — imagine how much more we can accomplish with your continued support.
funded for research
across N. America
Thanks to your generous donations, we've funded 15 research projects across eight laboratories over the last four years. Every day, we're growing our understanding of Batten disease, but it’s a long road to a cure — we need your help to continue this important work.
The road to a cure starts with you.
Will you please help us reach our destination?
RESEARCH & DISCOVERY
We collaborate with the brightest scientific minds to gain a better understanding of Batten disease and to develop potential treatments.
& REGULATORY APPROVAL
If we see positive results, we seek FDA approval to begin a clinical trial. This helps us understand potential side effects. Individuals who participate in a clinical trial are partners in scientific history!
TESTING FOR EFFECTIVENESS
Potential treatments are then tested for safety and effectiveness. We look to see if the outcome is what we expected and hoped for.
A CURE IS RIGHT AROUND THE CORNER
The ultimate goal is to
cure — and potentially prevent — Batten disease.
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