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4 Years:
funding research

2 Inspirations:
Amelia and Makenzie

1 Goal:
cure Batten disease

We've Come So Far Thanks to Your Support

At ForeBatten Foundation, we work tirelessly to give children with Batten disease the best possible life, to spread awareness of the urgency to fund new treatments, and to help all families affected by Batten disease.

Your past support has helped us achieve so much — imagine how much more we can accomplish with your continued support. 

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$3.5
MILLION

funds
raised

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95%
OF FUNDS

support
research

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15
PROJECTS

funded for research

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8
LABS

across N. America

Thanks to your generous donations, we've funded 15 research projects across eight laboratories over the last four years. Every day, we're growing our understanding of Batten disease, but it’s a long road to a cure — we need your help to continue this important work.

The road to a cure starts with you.
Will you please help us reach our destination?

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RESEARCH & DISCOVERY

We collaborate with the brightest scientific minds to gain a better understanding of Batten disease and to develop potential treatments.

CLINICAL TRIALS
& REGULATORY APPROVAL

If we see positive results, we seek FDA approval to begin a clinical trial. This helps us understand potential side effects. Individuals who participate in a clinical trial are partners in scientific history!

TESTING FOR EFFECTIVENESS

Potential treatments are then tested for safety and effectiveness. We look to see if the outcome is what we expected and hoped for.

A CURE IS RIGHT AROUND THE CORNER

The ultimate goal is to
cure — and potentially prevent — Batten disease.

Your donation
will help!